Arab Today, arab today chinese ngo discloses use of ice bucket challenge donations
Last Updated : GMT 06:55:27
Arab Today, arab today
Arab Today, arab today

Chinese NGO discloses use of ice bucket challenge donations

Arab Today, arab today

Arab Today, arab today Chinese NGO discloses use of ice bucket challenge donations

Use of ice bucket challenge donations
Jinan - XINHUA

A Chinese NGO disclosed on Saturday how money raised by Chinese celebrities through the popular ice bucket challenge last year has been used to benefit treatment and support for ALS patients.

The Chinese fundraiser followed a popular campaign in the United States to raise awareness about Amyotrophic Lateral Sclerosis (ALS), a rare neurodegenerative disease that causes muscle weakness, paralysis and respiratory failure. Chinese businessmen and celebrities were challenged to pour a bucket of ice water on themselves or opt instead to donate to help those with ALS, with many choosing to do both.

The proceeds of the campaign in China, totaling more than 8 million yuan (1.28 million U.S. dollars), went to the China-Dolls Center for Rare Disorders (CCRD).

However, some in China questioned whether it was appropriate to donate to CCRD, a non-governmental organization focused mostly on supporting those with Osteogenesis imperfecta (OI), another rare disease characterized by bones that break easily, often with no apparent cause.

The NGO set out to clear the doubts on Saturday during its fourth national conference for people with OI by disclosing how the 8 million it received will help make a difference in the lives of ALS patients.

CCRD said 5.57 million yuan was donated specifically for ALS, and the organization has used the money to support 158 ALS patients in China and to help organizations meet the medical and social needs of ALS patients.

The rest of the 8.14 million donation has been used for NGOs that focus on counselling and other support for rare disease patients.

"By making the whole process transparent, we hope people understand that behind all the fanfare, NGOs are committed to making a difference, though not in a perfect way," said Wang Yiou, founder of the CCRD.

Name *

E-mail *

Comment Title*

Comment *

: Characters Left

Mandatory *

Terms of use

Publishing Terms: Not to offend the author, or to persons or sanctities or attacking religions or divine self. And stay away from sectarian and racial incitement and insults.

I agree with the Terms of Use

Security Code*

Arab Today, arab today chinese ngo discloses use of ice bucket challenge donations Arab Today, arab today chinese ngo discloses use of ice bucket challenge donations

 



Arab Today, arab today
Arab Today, arab today Mohamed Bahari prepares new collection for spring 2017

GMT 06:15 2017 Monday ,27 February

Mohamed Bahari prepares new collection for spring 2017
Arab Today, arab today 17.4m tourists visit UAE in 2016

GMT 00:47 2017 Monday ,27 February

17.4m tourists visit UAE in 2016
Arab Today, arab today Sheds light on major steps in 12-year career

GMT 06:07 2017 Monday ,27 February

Sheds light on major steps in 12-year career
Arab Today, arab today Iran complying with nuclear deal

GMT 07:14 2017 Saturday ,25 February

Iran complying with nuclear deal
Arab Today, arab today Ayat Abaza says state TV presented major stars

GMT 03:52 2017 Sunday ,26 February

Ayat Abaza says state TV presented major stars
View News in Arabic - Business: اقتصاد دولي
Arab Today, arab today
Arab Today, arab today
Arab Today, arab today Reading therapy relieves mental disorders

GMT 15:39 2017 Friday ,24 February

Reading therapy relieves mental disorders
Arab Today, arab today UK appoints 1st Scotland Yard chief in 188 years

GMT 05:14 2017 Thursday ,23 February

UK appoints 1st Scotland Yard chief in 188 years
Arab Today, arab today Penguins in the age of dinos

GMT 11:44 2017 Saturday ,25 February

Penguins in the age of dinos
Arab Today, arab today Pluto's unruly moons

GMT 06:31 2015 Thursday ,04 June

Pluto's unruly moons
Arab Today, arab today 'Constructive' Vauxhall talk with union

GMT 08:54 2017 Saturday ,25 February

'Constructive' Vauxhall talk with union
Arab Today, arab today Tesla back into red but revenue grows

GMT 07:27 2017 Thursday ,23 February

Tesla back into red but revenue grows
Arab Today, arab today Reasons for the delay 'On the Stairs of Servants'

GMT 06:42 2017 Saturday ,25 February

Reasons for the delay 'On the Stairs of Servants'
Arab Today, arab today Ex-yoga missionary unleashes rage

GMT 12:16 2017 Thursday ,23 February

Ex-yoga missionary unleashes rage

GMT 07:23 2017 Friday ,24 February

Ola Ghanem hopes to work with M.Ramadan

GMT 12:35 2017 Tuesday ,21 February

63-Year-Old Woman Delivers Baby

GMT 18:23 2017 Friday ,24 February

Fadi explains secrets of  Nancy Ajram's newlook

GMT 10:28 2017 Wednesday ,22 February

Milan laughs while Rome cries

GMT 19:45 2017 Monday ,20 February

Sarah Belamesh designs antiques of "ceramic"

GMT 10:51 2017 Saturday ,25 February

Pigs with edited genes show resistance

GMT 14:04 2017 Friday ,24 February

Messi visit will contribute in tourism

GMT 13:12 2015 Saturday ,09 May

Sheikh Sultan opens Sharjah Centre

GMT 22:42 2017 Thursday ,23 February

Nasima Gamei revives heritage in jewelries
Arab Today, arab today
Arab Today, arab today
 
 Arab Today Facebook,arab today facebook  Arab Today Twitter,arab today twitter Arab Today Rss,arab today rss  Arab Today Youtube,arab today youtube  Arab Today Youtube,arab today youtube
arabstoday arabstoday arabstoday arabstoday
arabstoday arabstoday arabstoday
arabstoday
بناية النخيل - رأس النبع _ خلف السفارة الفرنسية _بيروت - لبنان
arabstoday, Arabstoday, Arabstoday